Missed Signals: The Cost of Overlooking the Early Signs of Autism and ADHD in Women
How young girls slip through the cracks of early diagnosis, and what happens when the people who "know" are gaslit not to trust themselves
You See It. They Don’t.
You notice all the “quirks.” The picking, the fidgeting, the overstimulated meltdown after a long day out. The way your daughter seems to experience life at a different volume - textures, sounds, and social rules all dialed up while everyone else acts like it’s just background noise.
Then you speak up about your quiet fears, the ones that linger in the back of your mind. Only to get brushed off with, “She’s fine. She’ll grow out of it. Don’t make it such a big deal.”
But you do worry, and not because you’re anxious or overprotective.
You worry because you remember being that kid. And you know what it’s like to be misread and unseen.
The early signs are always there. The world is simply not dialed in enough to spot them.
Lost in Translation: Why Early Signals Get Dismissed
The Racial and Ethnic Bias
If your child is part of the Black or Latino community, chances are, you’re forced to fight much harder and wait much longer just to get them on that dreaded waiting list. Research shows that Black children are diagnosed with autism an average of 1.5 years later than their white peers, if at all. Latino families navigate a similarly infuriating maze of language barriers, cultural stigma, and providers who don’t care enough to reach out.
Sometimes, it feels like the system is designed to keep your child invisible to the very people who could help.
Cultural and Religious Traditions
In many Asian, Middle Eastern, and African families, difference is not simply a taboo topic. Some cultures treat neurodivergence as a curse, secret, a sin, or a family failure. Shame travels through generations. I’ve sat across the table from relatives who insisted, “Don’t talk about this. What will people say?” It’s not concern—it’s fear and vanity.
Stigma and pride often keep real needs hidden in plain sight.
Limited Access to Adequate Healthcare
If you’re juggling bills, barely getting by, living rural, or don’t have the privilege of insurance, you know this already: the system puts you at the very bottom of the line. Children in low-income households are less than half as likely to be screened for developmental delays before the age of five. The waitlists stretch on, especially for daughters who don’t fit the textbook.
Access is inherently unequal. The system ultimately fails the ones who need it most.
Why Neurodivergence Looks (Very) Different in Girls
Masking and Mimicry
From very early on, girls are being conditioned to people-please, camouflage, and obey to keep the peace and get the validation. They become masterful at the art of blending in, holding it together for the world, while falling apart in silence and alone.
I lived this. If you’re reading this, chances are you did too. “Good girl” is a mask that gets worn like a badge of honor, when all it does is hide overwhelm, shutdown, and excruciating pain.
Teachers and doctors look for “classic” symptoms - loud, disruptive, obvious. But suffering doesn’t always scream form the rooftops.
Masking isn’t coping. It’s burying the pain to survive.
Biology: Hormones and Neurotransmitters
Girls’ brains and bodies have a completely different wiring. Estrogen and progesterone change how dopamine and serotonin work. To make it worse, the onset of puberty can make everything more intense or bury symptoms underground. Most healthcare providers not only never even mention this - they often dismiss it out of ignorance.
When Worlds Collide: The Gut-Brain Axis
Gut health is a centerpiece. A growing body of research shows girls with autism and ADHD often have unique gut microbiomes. Early exposure to environmental toxins, antibiotics, stress, and restrictive diets can dramatically amplify ND traits. If your daughter has endless stomachaches, food issues, or mood swings tied to digestion, it’s not just in her head — or yours.
Gut health is not a side issue. It’s a core part of a neurodivergent girl’s wellbeing.
What to Look For: Early Signs to Look For in Girls
Skin picking, hair pulling, or nail biting, head banging — called “bad habits,” often self-soothing or stimming.
Extreme sensitivity to noises, lighting, texture, or smells.
Withdrawal or meltdowns out of the blue, especially after social outings.
Perfectionism, anxiety, or acting “mature for her age”.
Hyperfocus on interests, but masking in a different environment.
Digestive issues, stomachaches, or food aversions and intolerances.
The list goes on. If you see any of these patterns, trust your instincts — even if nobody else would.
Girls rarely fit the practitioner’s checklist. Trust the patterns you see.
Empowering Parental Advocacy: How to Make Your Voice Heard
I’ve experienced first hand what it’s like to feel gaslit and dismissed for knowing deep down something’s off. But then I learned to do the research; to bring data, not emotions to the table:
Keep a log of what you see, triggers, and what works at home.
Bring specific, dated examples to every meeting.
Ask bold questions. Like, “How does your screening account for girls and cultural differences?”
Request referrals to specialists who have a proven track record of understanding ND women and girls.
Find your people: online groups, ND-affirming therapists, other parents who get it (still rare).
Even if you are the only one waving this flag (for now), but you are not wrong. Trust your instincts. You are the expert on your child.
More Questions Every Parent Should Ask
How do you adjust screening for gender and culture?
What’s next if my child doesn’t fit the “classic” checklist?
How will you address her sensory, digestive, and emotional needs?
What resources exist for families facing stigma or language barriers?
How will you support us in tracking and advocating for early intervention?
Bottom Line: The right questions open the door to real support.
The Real Cost of Delayed Diagnosis — and the Real Hope of Early Intervention
Going undiagnosed as a woman comes at a cost: the self-esteem, the mental health, and years - if not decades - of feeling broken. A late-diagnosed woman faces increased rates of anxiety, depression, and lifelong unresolved trauma.
But every time you trust your gut, every time you push for answers, every time you keep the records and take the courage to ask hard questions and advocate — you help break the cycle of ignorance and dismissal.
Silence is the enemy. But your voice? It holds the power to change everything.
And that is not a burden. It’s your legacy. 💜
You wrote this with so much care and courage. It’s the kind of writing that helps people feel less like they’re overreacting, and more like they’ve been right to trust their gut all along.